I speak with my good friend and fellow Autism parent, Lindsay Fogarty. She’s an Autism, Rare Disease and patient advocate, as well as, a blogger and volunteer lobbyist. We talk about why she’s called “The Rare Disease Mom”, what her daily life is like, what she’s doing to raise awareness and help others. This is a very powerful, uplifting and inspirational conversation. Go grab a snack and enjoy the great conversation. ☺
Lindsay can be found at http://therarediseasemom.com/ (therarediseasemom.com)
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You can find me: https://my.captivate.fm/theautismdad.com (theautismdad.com)
Twitter: https://twitter.com/theautismdad (https://twitter.com/theautismdad)
This episode is sponsored by Mightier. Mightier is an amazing program out of Harvard Medical and Boston Children’s. It uses video games to teach kids to emotionally self-regulate. Visit http://bit.ly/39HzS5Z (theautismdad.com/mightier) and find out more information, including how to get a free 30 day trial.
This episode is brought to you by Probably Genetic. Probably Genetics is helping me with my oldest, who suffers from multiple rare genetic diseases. Probably Genetic is helping me to find the answers to questions that have long gone unanswered. Probably Genetic specializes in identifying rare genetic diseases that often go undiagnosed, especially in children already diagnosed with Autism. They are on a mission to make full genetic sequencing accessible to those who need it. They significantly reduced the cost and drastically reduced the wait time as well. If you are one of the countless people in need of genetic testing, please visit probablygenetic.com to find out more and use the discount code “theautismdad400″ to get $400 off. If you already had a whole exome or whole genome test done but didn’t get an answer, they can re-analyze your existing data. If you don’t have the data available, they’ll help you get it from your lab free of charge. You can join their re-analysis waitlist at http://bit.ly/2NTtgZa (https://www.probablygenetic.com/waitlist.html).”
Please take a minute and answer a few survey questions. This helps Probably Genetic better understand how best to help families like mine. http://bit.ly/2OcKfpA (Click Here)
This episode is brought to you by AngelSense. Wandering is a huge problem in the Autism community and it’s reached epidemic levels. AngelSense is working to save the lives of Autistic kids who wander, by empowering parents with GPS tracking tools that helps them to immediately intervene should an episode of elopement occur. Visit http://bit.ly/2tCYw7o (angelsense.com) for more information.
This episode is sponsored by Lakikid.com. Visit https://my.captivate.fm/Lakikid.com/theautismdad (Lakikid.com/theautismdad) and use code “theautismdad” to save 20% on their amazing sensory tools.
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